Upcoming Webinar

Drisapersen Update with Prosensa Join us: March 25 at 1pm eastern Prosensa will present a status update on Drisapersen and its follow-on compounds in a patient focused webinar hosted by United Parent Projects Muscular Dystrophy (UPPMD) and moderated by PPMD’s Vice...

Insamlingskampanj

Petra Palmgren Lindwall, mamma till Max 6.5 år, och som har Duchennes har initierat en insamlingskampanj tillsammans med en utmaning att springa Mindnattsloppet i Göteborg den 23 augusti 2014. Om du vill vara med och samla in pengar till SMDF via Petras kampanj går du...

Contemporary Cardiac Issues in Duchenne

Heart issues don’t just affect some people with Duchenne; they affect ALL people with Duchenne and heart failure remains one of the leading causes of death in Duchenne. Cardiac concerns continue to be a top priority for PPMD. One way we have taken action to...